Project Name: You First

Project Summary:

You First is a nurse-led patient support programme supporting over 1,500 patients across 60+ NHS Trusts and Health Boards. The Novartis You First offering covers several clinical indications and is funded via a Package Deal, directly with Trusts. Novartis receives anecdotal feedback from HCPs, pharmacists and nurses about the benefits to the NHS from You First but do not have a mechanism or access to full data to assess the impact You First may have on the NHS. This Collaborative Working Project (CWP) aims to support the audit of retrospective data to understand the impact You First has had on the Rheumatology service at the CW Partner.

Planned Milestones:

The collaborative working will;

  1. Analyse how You First patient support program has impacted the Trust’s service from a financial perspective and freed up capacity
  2. Explore how You First enhances patient care and whether its introduction has helped the service meet their patient needs
  3. Review how it has provided the Trust’s clinical team with the confidence of moving patients to a community-based setting
  4. Identify any improvements that can be made to the existing You First programme
MilestoneDescription / Measure of SuccessPlanned Competion
1Project kick off meetingUp to 1 month from signing CWP
2Collation of service data and relevant
clinical data
Up to 2 months of Milestone 1
3Analysis of data and initial findings
reported back
Up to 1 month of Milestone 2
4Write up of abstract and posterUp to 3 months of Milestone 3
5Completion of Outcomes Summary
Document
Up to 1 month from Milestone 4

 

The third-party, contracted by Novartis, will receive the anonymised data from the CW Partner to analyse. The third-party will also write up the abstract and poster with input from the CW Partner.

Expected Benefits:

For the Patient:

  • Allowing more patients to access community-based care and in a more efficient manner
  • Understanding the required improvements to You First will directly benefit patients by having a targeted approach to accessing PSP services

For the NHS:

  • Obtain tangible evidence that the utilization of You First is beneficial to the NHS and patient care which would increase confidence in the use of the You First PSP to enable more patients to gain access
  • Understand the quantitative impact a PSP has on their service
  • Provides data to support the sustainability of NHS-led PSPs in the longer term for community-based patient care

For Novartis:

  • Understanding the impact Novartis PSPs may have on the NHS
  • Identify improvements that can be made to Novartis PSPs, in particular You First
  • Showcase NHS and Novartis partnerships to drive future collaboration
  • Better understanding of overall customers’ and patients’ needs

Start Date and Duration: 

Start Date: May-2022

Duration: 8 months

457659

16-May-2022

Project Name: Understanding the service-impact that a Patient Support Programme provides and the confidence it creates in the delivery of community-based patient care.

Partner Organisation(s): Bedfordshire Hospitals NHS Foundation Trust, Luton and Dunstable University Hospital, Lewsey Rd, Luton LU4 0DZ (the “CW Partner”)

Completion Date: 15th January 2023 sumbmission to Eular

Outcome Summary: Collaborative Working Project (CWP) is complete. 

Key Project Outcomes Data:

Eular write up has been submitted. At time of writing, it is awaiting acceptance.

Outcomes:

MilestoneDescripton / Measure of SuccessPlanned Completion
1Project kick off meetingComplete
2Collation of service data and relevant
clinical data
Complete
3Analysis of data and initial findings
reported back
Complete
4Write up of abstract and posterComplete (submission to Eular 15-January-2023)
5Completion of Outcomes Summary
Document
Complete

Conclusion:

Implementation of You First at Luton and Dunstable University Hospital yielded substantial cost savings for the NHS, with outsourced standard visits providing the most cost savings.  You First allowed people with PsA or AS to be managed at home, freeing NHS capacity for appointments with new and complex patients in the clinic.

Additional Content:

Eular (submitted 15-January-2023, pending acceptance)

FA-11368685 | February 2025