Knowing how & when to speak to your HCP
Be prepared for change
Keeping on track with your treatment and management plan is important when taking control of your CML journey. Though, there may be times where you need to change track and try something different to help you manage your CML better. Your healthcare team and cancer care team are there to support you every step of the way, so remember to openly discuss your symptoms, treatment response, and any other issues you may be experiencing – this will allow your team to reassess your treatment plan and make changes where appropriate.
If you find something isn’t working for you, the best thing to do is arrange an appointment to discuss it with your cancer team.
At your appointment:
| Ensure you have a list of questions you want to ask. |
| Prepare a list of new symptoms or side-effects you have been experiencing, especially if it is having a large impact on your daily life (e.g. are you feeling overwhelmingly fatigued, or experiencing depression?). |
| Take a family member or friend with you – they can be a great support when it comes to navigating the conversation with your healthcare team and asking questions. |
| Be sure to ask about any updates to treatment guidance that could help improve the management of your CML. |
Being open about how you feel can prompt your healthcare team to review your treatment plan and see if there are any additional, or even alternative, ways to help manage your symptoms and/or reduce side effects.
It is important to make sure that you stay on track with any new changes in your CML management plan. Remember to continue logging your symptoms and keep your cancer care team in the loop.
Being diagnosed with Chronic Myeloid Leukaemia (CML) does not mean you lose control of your future. Working closely with your cancer care team to create and refine your personal treatment plan is a great way to help you gain control, stay on track, and live your life the way you want.
Remember, you are not alone, and every appointment is an opportunity to ask any questions you might have. This guide has been designed to help you organise your thoughts and make the most of those opportunities. It may be helpful for you to print it and have it ready for your next appointment.
Download our appointment guide to help get your CML back on track
This guide has been designed to support you with your conversations at appointments and check ups.